Family caregivers’ access to pediatric gastrostomy home care education: A qualitative study
DOI:
https://doi.org/10.12707/RVI22097Keywords:
caregiver, child, gastrostomy, health education, nursesAbstract
Background: Family caregivers’ information on caring for a child’s gastrostomy at home.
Objective: To analyze family caregivers’ access to pediatric gastrostomy home care education.
Methodology: This study used an arts-based creative research method (Dinâmica Corpo-Saber do Método Criativo Sensível) with ten family members of hospitalized infants and preschool-aged children.
The study was conducted between June and December 2019 in a public hospital in Rio de Janeiro, Brazil. Lexical analysis was performed using the IRAMUTEQ® software Q®
Results: Family caregivers had access to two sources of information to prepare for their children’s hospital discharge. The first was the education received through nurses’ guidance and demonstration of procedures. The second was the caregivers’ observation of health professionals’ care delivery to their children. Some family caregivers received no guidance, showing limitations in discharge preparation.
Conclusion: Families of children fed via gastrotomy tube must be mobilized to deliver safe care based on nursing knowledge. Nurses must consider family members’ needs regarding the continuity of care at home.
Downloads
References
Bazzan, J., Marten, V., Gabatz, R., Klumb, M., & Schwartz, E. (2021). Comunicação com a equipa de saúde intensivista: Perspetiva da família de crianças hospitalizadas. Revista de Enfermagem Referência, 5(7), e21010 https://doi.org/10.12707/rv21010
Berman, L., Baird, R., Sant'Anna, A., Rosen, R., Petrini, M., Cellucci, M., Fuchs, L., Costa, J., Lester, J., Stevens, J., Morrow, M., Jaszczyszyn, D., Amaral, J., & Goldin, A. (2022). Gastrostomy tube use in pediatrics: A systematic review. Pediatrics, 149(6), e2021055213. https://doi.org/10.1542/peds.2021-055213
Brigido, V., Camargo, & Justo, A. (2013). Tutorial para uso do software de análise textual IRAMUTEQ. http://www.iramuteq.org/documentation/fichiers/tutoriel-en-portugais
Broering, C., & Crepaldi, M. A. (2018). Percepções e informações das mães sobre a cirurgia de seus filhos. Fractal: Revista de Psicologia, 30(1), 3–11. https://doi.org/10.22409/1984-0292/v30i1/1434
Cabral, I. E. & Neves, E. T. (2016). Pesquisar com o método criativo e sensível na enfermagem: Fundamentos teóricos e aplicabilidade. In M. R. Lacerda & R. G. Costenaro (Orgs), Metodologias da pesquisa para a enfermagem e saúde: Da teoria à prática (pp. 325-350). Moriá.
Cabral, I. E., Silva, J. J., Zillmann, D. O., Moraes, J. R., & Rodrigues, E. C. (2004). A criança egressa da terapia intensiva na luta pela sobrevida. Revista Brasileira de Enfermagem, 57(1), 35–39. https://doi.org/10.1590/S0034-71672004000100007
Colliére M. F. (1999) Promover a vida: Da prática das mulheres de virtude aos cuidados de enfermagem. Lidel.
Dipasquale, V., Aumar, M., Ley, D., Antoine, M., Romano, C., & Gottrand, F. (2022). Tube feeding in neurologically disabled children: Hot topics and new directions. Nutrients, 14(18), 3831. http://dx.doi.org/10.3390/nu14183831
Freire, P. (2011) Educação e Mudança (34 ed.). Paz e Terra. Góes, F. G., & Cabral, I. E. (2017). Discursos sobre cuidados na alta de crianças com necessidades especiais de saúde. Revista Brasileira de Enfermagem, 70(1), 163–171. https://doi.org/10.1590/0034-7167-2016-0248
Kami, M. T., Larocca, L. M., Chaves, M. M., Lowen, I. M., Souza, V. M., & Goto, D. Y. (2016). Working in the street clinic: Use of IRAMUTEQ software on the support of qualitative research. Escola Anna Nery, 20(3), e20160069 . https://doi.org/10.5935/1414-8145.20160069
Precce, M. L., Moraes, J. R., Pacheco, S. T., Silva, L. F., Conceição, D. S., & Rodrigues, E. C. (2020). Educational demands of family members of children with special health care needs in the transition from hospital to home. Revista Brasileira de Enfermagem, 73(suppl. 4). https://doi.org/10.1590/0034-7167-2019-0156
Ribeiro, A. P., Moraes, J. R., Queiroz, A. B., Góes, F. G., Silva, L. F., & Souza, T. V. (2022). Home care for children with gastrostomy. Revista Brasileira de Enfermagem, 75(suppl. 2). https://doi.org/10.1590/0034-7167-2020-0699
Rossetto, V., Toso, B. R., Rodrigues, R. M., Viera, C. S., & Neves, E. T. (2019). Development care for children with special health needs in home care at Paraná - Brazil. Escola Anna Nery, 23(1). https://doi.org/10.1590/2177-9465-ean-2018-0067