Citizen Science for Health in the Co-Creation of Evidence Summaries for Citizens

Authors

  • Sílvia Manuela Dias Tavares Silva Escola Superior de Enfermagem de Coimbra, Unidade de Investigação em Ciências da Saúde: Enfermagem, Coimbra, Portugal https://orcid.org/0000-0003-4166-9803
  • Elaine Santos Santana Escola Superior de Enfermagem de Coimbra, Unidade de Investigação em Ciências da Saúde: Enfermagem, Coimbra, Portugal https://orcid.org/0000-0002-5550-8018
  • Joana Vanessa Ribeiro Bernardo Escola Superior de Saúde Jean Piaget de Viseu, Viseu, Portugal https://orcid.org/0000-0003-3614-9061
  • Aline Conceição Silva Universidade de São Paulo, Escola de Enfermagem, Departamento de Enfermagem Materno-Infantil e Psiquiátrica, São Paulo, Brasil; Escola Superior de Enfermagem de Coimbra, Unidade de Investigação em Ciências da Saúde: Enfermagem, Coimbra, Portugal https://orcid.org/0000-0001-5843-2517
  • Carlos Lopes Instituto Superior de Psicologia Aplicada (ISPA), Lisboa, Portugal; Applied Psychology Research Center Capabilities & Inclusion, Lisboa, Portugal https://orcid.org/0000-0002-6440-4739
  • Cristina Vaz Almeida Applied Psychology Research Center Capabilities & Inclusion, Lisboa, Portugal; Sociedade Portuguesa de Literacia em Saúde, Lisboa, Portugal https://orcid.org/0000-0001-5191-1718
  • João Luís Alves Apóstolo Escola Superior de Enfermagem de Coimbra, Unidade de Investigação em Ciências da Saúde: Enfermagem, Coimbra, Portugal https://orcid.org/0000-0002-3050-4264

DOI:

https://doi.org/10.12707/RVI24.96.36966

Keywords:

citizen science, health literacy, citizen participation in science and technology, evidence-based practice, qualitative research

Abstract

Background: Citizen science (CS) and health literacy (HL) promote citizen involvement in scientific research and access to health information. CS enables citizen involvement in co-creating knowledge, while HL enhances citizens’ ability to make informed decisions.

Objective: To systematize older citizen involvement in the co-creation of evidence summaries for citizens (ESC), creating a replicable process and making health information more accessible.

Methodology: Methodological, qualitative study based on the assumptions of Polit and Beck and conducted with older people residing in the community. The data were analyzed according to Bardin’s content analysis methodology.

Results: The participants were actively involved. They reflected on each step and contributed to enhancing the understanding of the information. This collaborative process results in a guide for ESC co-creation and co-validation.

Conclusion: The methodology proved effective in involving citizens in the ESC co-creation, promoting health literacy and increasing the social relevance of scientific research. The guide can be replicated and used by other professionals and researchers.

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References

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Published

2025-03-31

How to Cite

Silva, S. M. D. T. ., Santana, E. S., Bernardo, J. V. R., Silva, A. C., Lopes, C., Almeida, C. V., & Apóstolo, J. L. A. (2025). Citizen Science for Health in the Co-Creation of Evidence Summaries for Citizens. Journal of Nursing Referência, 6(4), 1–8. https://doi.org/10.12707/RVI24.96.36966

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Research Articles