Eating practices and behaviors of families of children with autistic spectrum disorder
DOI:
https://doi.org/10.12707/RV21055Keywords:
child, feeding behavior, family, autism spectrum disorderAbstract
Background: Atypical eating behaviors are significantly common in children with autistic spectrum disorder (ASD) and can influence families’ organization of eating practices.
Objective: To understand the eating practices and behaviors of families of children with ASD.
Methodology: This is a qualitative and descriptive study, using the multiple case method, with the participation of 13 family members of children with ASD. Semi-structured interviews were conducted, and the analytical technique of cross-case synthesis was used to systematize the evidence.
Results: This study gathered evidence on eating conceptions and practices, the organization of families’ eating practices, and eating behaviors. Families’ conceptions of eating practices influence how they organize and meet their children’s care needs.
Conclusion: Each family develops their eating practices based on their context, food and cultural identity, and the different demands of their children’s eating behaviors and difficulties. Families need a support network to manage the organization of their daily routines.
Downloads
References
Aslan, F., & Ozcbe, H. (2018). Determination of nutritional behaviors of children with and without autism spectrum disorder and supplementary practices of parents. International Journal of Caring Sciences, 11(2), 756-767. http://www.internationaljournalofcaringsciences.org/docs/16_aslan_original_10_2.pdf
ANA Ethics Advisory Board. (2021). ANA position statement: Nurse’s role in providing ethically and developmentally appropriate care to people with intellectual and developmental disabilities. OJIN: The Online Journal of Issues in Nursing, 26(1). https://doi.org/10.3912/OJIN.Vol26No01PoSCol01
Baio, J. B., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Kurzius-Spence, M., Zahorodny, W., Rosenberg, C. R., White, T., Durkin, M. S., Imm, P., Nikolaou, L., Yeargin-Allsopp, M., Lee, L.-C., Harrington, R., Lopez, M., Fitzgerald, R. T., Hewitt, A., . . . Dowling, N. F. (2018). Prevalence of autismo spectrum disorder among children aged 8 years: Autism and developmental disabilities monitoring network, 11 sites, United States, 2014. MMWR Surveill Summ, 67(6), 1-23. https://doi.org/10.15585/mmwr.ss6706a1
Biffi, D., Mellos, A., Ribeiro, R. V., Pereira, L. D., & Manzoni, F. D. (2019). Percepcoes sobre o autismo na perspectiva das maes. Revista Enfermagem Atual InDerme, 87(25 Supl.). https://doi.org/10.31011/reaid-2019-v.87-n.25-art.222
Cho, S., & Sonoyama, S. (2020). Combining stimulus fading with simultaneous stimulus presentation in a school setting for food selectivity in a child with autism spectrum disorder. Education and Treatment of Children, 43, 335-345. https://doi.org/10.1007/s43494-020-00011-5
Curtiss, S. L., & Ebata, A. T. (2019). The nature of family meals: A new vision of families of children with autism. Journal of Autism and Developmental Disorders, 49(2), 441-445. https://doi.org/10.1007/s10803-018-3720-9
El-Kour, T., Olive, M., Neophytou, N., & Pretorius S. (2020). Nutrition and dietary considerations during treatment of autism spectrum disorder. In T. El-Kour (Org.), 360°autism: Nutrition and dietary considerations during treatment of autism spectrum disorder (pp. 329-338). Elsevier. https://doi.org/10.1016/B978-0-12-818466-0.00018-6
Faro, K. C., Santos, R. B., Bosa, C. A., Wagner, A., & Silva, S. S. (2019). Autismo e maes com e sem estresse: Analise da carga materna e suporte familiar. Revista Psico, 50(2), e30080. https://doi.org/10.15448/1980-8623.2019.2.30080
Goh, J. X., Aishworiya, R., Ho, R.C., Wang, W., & He, H.-G. (2021). A qualitative study exploring experiences and support needs of parents of children with autism spectrum disorder in Singapore. Journal of Clinical Nursing, 30(21-22), 3268-3280. https://doi.org/10.1111/jocn.15836
Kirby, V. A., Williams, K. L., Watson, L. R., Sideris, J., Bulluck, J., & Baranek, G. T. (2019) Sensory features and family functioning in families of children with autism and developmental disabilities: Longitudinal associations. The American Journal of Occupational Therapy, 73(2), 7302205040p1-7302205040p14. https://doi.org/10.5014/ajot.2018.027391
Mert, S., & Koşgeroğlu, N. (2021). Meeting the care needs of people with intellectual and developmental disabilities and their families through the Model of Nursing Based on Activities of Living. Journal of Intellectual Disabilities. Advance online publication. https://doi.org/10.1177%2F17446295211010023
Pariseau-legault, P., & Banville, M. (2019). Autisme et alimentation: Miser sur les forces de la famille. In C. Rivieres-Piegon (Ed.), Autism: Ces réalités sociales dont il faut parler (pp. 81-92). CIUSS du Center Sud de I’Ile de Montreal.
Paula, F. M., Silverio, G. B., Jorge, R. P., Felicio, P. V., Melo, L. A., & Carvalho, K. C. (2020). Transtorno do espectro do autismo: Impacto no comportamento alimentar. Brazilian Journal of Health Review, 3(3), 5009-5023. https://doi.org/10.34119/bjhrv3n3-083
Petty, M. L., Figueiredo, M., Koritar, P., Deram, S., & Pascoal, C. (2019). Nutricao comportamental no atendimento de criancas e adolescentes. In M. Alvarengam, M. Figueiredo & F. Timerman (Eds.), Nutrição comportamental (2ª ed., pp. 433-463). Manole.
Poulain, J. P., Proenca, R. P., & Garcia, R. W. (2017). Abordagem metodologica para o diagnostico de comportamento e praticas e alimentares: . In R. W. Diez-Garcia & A. M. Cervato-Mancuso (Orgs.), Mudanças alimentares e educação alimentar e nutricional (pp. 146- 157, Vol. 2). Guanabara Koogan.
Rooke, M. I., Pereira-Silva, N. L., Crolman, S. R., & Almeida, B. R. (2019). Funcionamento familiar e rede social de apoio: Familias com criancas com sindrome de down. Gerais: Revista Interinstitucional de Psicologia, 12(1), 142–158. https://doi.org/10.36298/gerais2019120111
Schneider, M., VanOrmer, J., & Zlomke, K. (2019). Adverse childhood experiences and family resilience among children with autism spectrum disorder and attention-deficit /hyperactivity disorder. Journal of Developmental e Behavioral Pediatrics, 40(8), 573-580. https://doi.org/10.1097/dbp.0000000000000703
Valencia Medina, J. A., Rios, K., Aleman-Tovar, J., & Burke, M. M. (2020). Exploring patterns between school perceptions, child behavior, and maternal well-being among Latina mothers of children with autism spectrum disorder (ASD). International Journal of Developmental Disabilities. Advance online publication. https://doi.org/10.1080/20473869.2019.1706332
Yin, R. K. (2015). Case study: planning and methods. Porto Alegre: Bookman.
Weissheimer, G., Mazza, V. A., Lima, V. F., Mantovani, M. F., Freire, M. H., & Guimaraes, P. R. (2018). Relationship of family management with sociodemographic aspects and child and adolescent physical dependence in neurological disorders. Revista Latino-Americana de Enfermagem, 26, e3076. https://doi.org/10.1590/1518-8345.2494.3076