Caregivers’ perceptions of the requirements of their role: A qualitative study
DOI:
https://doi.org/10.12707/RVI23.74.31501Keywords:
caregivers, qualitative research, nursing care, continuity of patient careAbstract
Background: Assuming the role of a caregiver involves meeting several demands. Understanding the caregiver’s perspective can aid in this transition.
Objective: To identify caregivers’ perceptions of the requirements for taking on this role.
Methodology: A descriptive exploratory study with a qualitative approach was conducted, using semi-structured interviews with a convenience sample of nine caregivers of dependent persons without previous experience. The data obtained was analyzed using MAXQDA software and followed Bardin’s principles of content analysis. Ethical principles were adhered to, and the study was approved by the Ethics Committee (opinion OBS.SF.245-2021).
Results: The data analysis revealed three categories and their subcategories: Awareness; Skills, (Feeling capable of providing care after hospital discharge; Knowledge; Capabilities; Emotional self-control); and Resources.
Conclusion: The requirements identified in caregivers’ perceptions can improve nurses’ assessment of the conditions that facilitate the assumption of this role in the context studied. Future studies should focus on the perceptions of health professionals/clinicians regarding this phenomenon.
Downloads
References
Bardin, L. (2020). Análise de conteúdo (4ª ed.). Edições 70.
Chick, N., & Meleis, A. (1986). Transitions: A nursing concern. In P. L. Chinn (Ed.), Nursing research methodology (pp. 237-257). Aspen Publication.
Decreto-Lei n.º 100/2019 da Assembleia da Republica. (2019). Diário da Republica: I série, nº 171. https://dre.pt/dre/detalhe/lei/100-2019-124500714
Guest, G., Namey, E., & Chen, M. (2020). A simple method to assess and report thematic saturation in qualitative research. PLoS One, 15(5), e0232076. https://doi.org/10.1371/journal.pone.0232076
International Council of Nursing. (2006). Classificação internacional para a prática de enfermagem: CIPE® versão 1.0. Ordem dos Enfermeiros.
International Council of Nursing. (2011). Classificação internacional para a prática de enfermagem: Versão 2. https://www.ordemenfermeiros.pt/media/27837/ordem-enfermeiros-cipe.pdf
Lincoln, Y. S., & Guba, E. (1985). Naturalistic inquiry (6th ed.). Sage.
Lutz B. J. Young M. E. Cox K. J. Martz C., & Creasy K. R (2011). The crisis of stroke: Experiences of patients and their family caregivers. Topics in Stroke Rehabilitation, 18(6), 786–797. https://doi.org/10.1310/tsr1806-786
Lutz, B. J., Young, M. E., Creasy, K. R., Martz, C., Eisenbrandt, L., Brunny, J. N., & Cook, C. (2017). Improving stroke caregiver readiness for transition from inpatient rehabilitation to home. The Gerontologist, 57(5), 880–889. https://doi.org/10.1093/geront/gnw135
Machado, P. (2013). Papel do prestador de cuidados: Contributo para promover competências na assistência do cliente idoso com compromisso do autocuidado [Tese de doutoramento, Universidade Católica Portuguesa]. Repositório Institucional da Universidade Católica Portuguesa. https://repositorio.ucp.pt/handle/10400.14/15344
Martins, M. M., Monteiro, M., & Gonçalves, L. (2016). Vivências de familiares cuidadores em internamento hospitalar: O início da dependência do idoso. Revista de Enfermagem UFPE On Line, 10(3), 1109-1118. https://doi.org.10.5205/reuol.8702-76273-4-SM.1003201622
Meleis, A. I. (2010). Transitions theory: Middle range and situation specific theories in nursing research and practice. Springer
Meleis, A. I., & Trangenstein, P. A. (1994). Facilitating transitions: Redefinition of the nursing mission. Nursing Outlook, 42(6), 255–259. https://doi.org/10.1016/0029-6554(94)90045-0
Meleis, A. I., Sawyer, L. M., Im, E. O., Messias, D. K., & Schumacher, K. (2000). Experiencing transitions: An emerging middle-range theory. Advances in Nursing Science, 23(1), 12–28. https://doi.org/10.1097/00012272-200009000-00006
Melo, C. R., Rua, M. S., & Santos, C. S. (2014). Necessidades do cuidador familiar no cuidado à pessoa dependente: Uma revisão integrativa da literatura. Revista de Enfermagem Referência, 4(2), 143-151. https://doi.org/10.12707/RIV14003
Nunes, M. C., Gonçalves, M., Vidinha, T., Santos, E., & Núcleo de Investigação em Enfermagem: CHUC. (2022). El juicio clínico de las enfermeras sobre el empoderamiento del cuidador. Index de Enfermería, 31(3), e14092. http://ciberindex.com/c/ie/e14092
Nunes, S. F., Alvarez, A. M., Costa, M. F., & Valcarenghi, R. V. (2019). Fatores determinantes na transição situacional de familiares cuidadores de idosos com doença de parkinson. Texto Contexto-Enfermagem, 28, e20170438. https://doi.org/10.1590/1980-265X-TCE-2017-0438
Schumacher, K. L., & Meleis, A. I. (1994). Transitions: A central concept in nursing. Image the Journal of Nursing Scholarship, 26(2),119–127. https://doi.org/10.1111/j.1547-5069.1994.tb00929.x
Schumacher, K. L., Stewart, B. J., & Archbold, P. G. (1998). Con ceptualization and measurement of doing family caregiving well. Journal of Nursing Scholarship, 30(1), 63–69. https://doi.org/10.1111/j.1547-5069.1998.tb01238.x
Swartz, K., & Collins, L. G. (2019). Caregiver care. American Family Physician, 99(11), 699–706. https://www.aafp.org/pubs/afp/issues/2019/0601/p699.htm