Nurses’ perceptions of family involvement in the care of critically ill children
DOI:
https://doi.org/10.12707/RVI24.56.35756Keywords:
pediatric intensive care, involvement, family, nursing, critical situationAbstract
Background: Family involvement in the care of critically ill children benefits the child-family-nurse triad by promoting closeness, security, and emotional support.
Objective: To explore nurses’ perceptions of family involvement in the care of critically ill children.
Methodology: This descriptive, exploratory, and qualitative study was conducted with 26 nurses from a pediatric intensive care unit in a hospital center. The nurses were organized into four focus groups, and content analysis was used to examine and process the data.
Results: The following three categories emerged - Procedures Used, Involvement Strategies, and Type of Care. Participants reported using skills assessment and family training as family involvement procedures, based on a set of pre-established criteria, as well as strategies such as activity supervision, information for decision-making, negotiation, and unit personalization. It was also determined that these strategies were not applicable to all types of care.
Conclusion: Family involvement in care is essential. However, nurses experience multiple limitations that they attempt to minimize through procedures that require the involvement of family members in care delivery.
Downloads
References
Bennett, R., & LeBaron, V. (2019). Parental perspectives on roles in end-of-life decision making in the pediatric intensive care unit: An integrative review. Journal of Pediatric Nursing, 46, 18-25. https://doi.org/10.1016/j.pedn.2019.02.029
Boyamian, T., Mandetta, M., & Balieiro, M. (2021). Nurses´ attitudes towards families in neonatal units. Revista da Escola de Enfermagem da USP, 55, e03684. https://doi.org/10.1590/s1980-220x2019037903684
Burns, K., Misak, C., Herridge, M., Meade, M., & Oczkowski, S. (2018). Patient and family engagement in the ICU: Untapped opportunities and underrecognized challenges. American Journal of Respiratory and Critical Care Medicine, 198(3), 310-319. https://doi.org.10.1164/rccm.201710-2032CI
Flick, U. (2013). Métodos qualitativos na investigação científica. Monitor. Hetland, B., McAndrew, N., Perazzo, J., & Hickman, R. (2018). A qualitative study of factors that influence active family involvement with patient care in the ICU: Survey of critical care nurses. Intensive Critical Care Nursing, 44, 67-75. https://doi.org.10.1016/j.iccn.2017.08.008
Jaffa, M., & Hwang, D. (2021). Shared decision making in adult critical care. Cambridge University Press. https://doi.org/10.1017/9781108633246
Melo, T. F. (2020). Envolver a família no cuidado à pessoa em situação crítica: Estudo em contexto de cuidados intensivos [Dissertação de mestrado não publicada]. Escola Superior de Enfermagem de Coimbra.
Mirlashari, J., Valizadeh, S., Navab, E., Craig, J., & Ghorbani, F. (2019). Dark and bright-two sides of family-centered care in the NICU: A qualitative study. Clinical Nursing Research, 28(7), 869-885. https://doi.org.10.1177/1054773818758171
Polit, D., & Beck, C. (2019). Fundamentos de pesquisa em enfermagem: Avaliação de evidências para a prática da enfermagem (9ªed). Artmed.
Rennick, J., St-Sauveur, I., Knox, A., & Ruddy, M. (2019). Exploring the experiences of parent caregivers of children with chronic medical complexity during pediatric intensive care unit hospitalization: An interpretive descriptive study. BMC Pediatrics, 19(272), 1-10. https://doi.org.10.1186/s12887-019-1634-0
Sá, F. G. (2023). A família da pessoa em situação crítica: Desocultando o cuidado de enfermagem. Sabooks.
Sánchez-Rubio, L., Cleveland, L., Villalobos, M., & McGrath, J. (2021). Parental decision-making in pediatric intensive care: A concept analysis. Journal of Pediatric Nursing, 59, 115-124. https://doi.org.10.1016/j.pedn.2021.03.018
Waddington, C., Veenendaal, N. R., O’Brien, K., Patel, N., & International Steering Committee for Family Integrated Care. (2021). Family integrated care: Supporting parents as primary caregivers in the neonatal intensive care unit. Pediatric Investigation, 5(2), 148–154. https://doi.org/10.1002/ped4.12277
Walter, J., Sachs, E., Schall, T., Dewitt, A., Miller, V., Arnold, R., & Feudtner, C. (2019). Interprofessional teamwork during family meetings in the pediatric cardiac intensive care unit. Journal of Pain and Symptom Management, 57(6), 1089-1098. https://doi.org.10.1016/j.jpainsymman.2019.03.002
Weber, U., Zhang, Q., Garritano, J., Johnson, J., Anderson, N., Knies, A. K., Nhundo, B., Bautista, C., Huang, K. B., Branceanu, A.-M., Rosand, J., & Hwan, D. Y. 2021). Predictors of family dissatisfaction with support during neurocritical care shared decision- making. Neurocritical Care, 35, 714-722. https://doi.org.10.1007/s12028-021-01211-6
Wool, J., Irving, S., Meghani, S., & Ulrich, C. (2021). Parental decision-making in the pediatric intensive care unit: An integrative review. Journal of Family Nursing, 27(2), 154-167. https://doi.org.10.1177/1074840720975869
Wubben, N., Boogaard, M., Hoeven, J. G., & Zegers, M. (2021). Shared decision-making in the ICU from the perspective of physicians, nurses and patients: A qualitative interview study. BMJ Open, 11, e050134. https://doi.org.10.1136/bmjopen-2021-050134
