Who should have a say in health policy? A collaborative approach to public participation

Authors

  • Sofia Crisóstomo Iscte — University Institute of Lisbon, Lisbon; GAT — Portuguese Activist Group on Treatments, Lisbon, Portugal
  • Margarida Santos Iscte — University Institute of Lisbon, Lisbon; GAT — Portuguese Activist Group on Treatments, Lisbon, Portugal
  • Ana Raquel Matos Faculty of Economics of the University of Coimbra, University of Coimbra; Centre for Social Studies of the University of Coimbra, University of Coimbra, Portugal

DOI:

https://doi.org/10.7458/SPP202611143191

Keywords:

public participation, health, public policy, Portugal

Abstract

Using a participatory action research approach, this study examines support for public participation in health policy decision-making in Portugal. Strong support was observed, with key predictors including empowerment orientation, participation-related stereotypes, advocacy beliefs, membership in patient organisations, and prior participatory experience. Findings underscore the need to promote participatory spaces, adopt collaborative and inclusive approaches, raise awareness of public participation and the role of representative organisations, and foster citizen engagement.

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Published

2026-06-17