Collaborative exercise for developing a Local Strategy for Dementia
A case study in a central region of Portugal
Keywords:
Strategy, Community, Dementia, CoparticipationAbstract
In this study, the collaborative construction of a Local Strategic Plan for Dementia is presented and analysed. 15 institutions from territory in central Portugal participated in this dynamic, each represented by a reference professional and 2 senior technicians from the City Council (n=17). Participants with previous experience in providing care to elderly people and caring for people with dementia were recruited. The collaborative ideation dynamics took place in a single 8-hour session, and it was divided into 4 distinct phases: (i) Icebreaker presentation, (ii) co-design of objectives, (iii) co-design of strategic axes, (iv) co-design of intervention. A content analysis of the exercises and a summary were carried out according to the following structure: objectives for the strategic plan, strategic axes and actions to be implemented. Throughout the ideation exercises, more significant keywords were defined, reflecting the most relevant dimensions in assistance and care for people with dementia: 10 dimensions for processes;7 for social health; and 7 for policies. 5 axes were defined: Community Literacy, Combating Isolation, Aging in Place, Intergenerational, Dementia Friendly Service, supported by 13 objectives, 15 actions and 17 goals and 20 strategic partners. The design of a collaborative proposal for a Local Strategic Plan for Dementia proved to be an innovative and effective methodology, and it should, in the future, involve other community stakeholders and develop lines of action for the coordination and monitoring of the strategy.
References
Amjad, H., Wong, S. K., Roth, D. L., Huang, J., Willink, A., Black, B. S., Johnston, D., Rabins, P. V., Gitlin, L. N., Lyketsos, C. G., & Samus, Q. M. (2018). Health Services Utilization in Older Adults with Dementia Receiving Care Coordination: The MIND at Home Trial. Health Services Research, 53(1), 556–579. https://doi.org/10.1111/1475-6773.12647
A.R.S. Norte. (2019). Plano Regional de Demências para a Região de Lisboa e Vale do Tejo.
Blair, B., Hanley, M., Markwood, S., Link, G., Shah, N. R., & Iyengar, V. (2020). Local Efforts to Support People Living With Dementia and Encourage Brain Health Among Older Adults. Public Policy & Aging Report, 30(4), 181–185. https://doi.org/10.1093/ppar/praa026
de Vugt, M., & Dröes, R.-M. (2017). Social health in dementia. Towards a positive dementia discourse. Aging & Mental Health, 21(1), 1–3. https://doi.org/10.1080/13607863.2016.1262822
Ghose, R. (2005). The complexities of citizen participation through collaborative governance. Space and Polity, 9(1), 61–75. https://doi.org/10.1080/13562570500078733
Huber, M., Knottnerus, J. A., Green, L., Horst, H. v. d., Jadad, A. R., Kromhout, D., Leonard, B., Lorig, K., Loureiro, M. I., Meer, J. W. M. v. d., Schnabel, P., Smith, R., Weel, C. v., & Smid, H. (2011). How should we define health? BMJ, 343(jul26 2), d4163–d4163. https://doi.org/10.1136/bmj.d4163
Kenner, A. M. (2002). Securing the Elderly Body: Dementia, Surveillance, and the Politics of “Aging in Place.” Surveillance & Society, 5(3). https://doi.org/10.24908/ss.v5i3.3423
Lak, A., Rashidghalam, P., Myint, P. K., & Baradaran, H. R. (2020). Comprehensive 5P framework for active aging using the ecological approach: an iterative systematic review. BMC Public Health, 20(1), 33. https://doi.org/10.1186/s12889-019-8136-8
Local Government Association (UK). (2018). Dementia Post diagnosis support Report.
Maria Hägglund. (2009). Sharing is caring: integrating health information systems to support patient-centred shared homecare. Int J Integr Care, 9(e11).
McCabe, L., & Bradley, B. E. (2012). Supporting User Participation in Local Policy Development: The Fife Dementia Strategy. Social Policy and Society, 11(2), 157–169. https://doi.org/10.1017/S1474746411000558
Mccall, V., Mccabe, L., Rutherford, A., Bu, F., Wilson, M., & Woolvin, M. (2020). Blurring and Bridging: The Role of Volunteers in Dementia Care within Homes and Communities. Journal of Social Policy, 49(3), 622–642. https://doi.org/10.1017/S0047279419000692
Minkman, M. M. N., Ligthart, S. A., & Huijsman, R. (2009). Integrated dementia care in The Netherlands: a multiple case study of case management programmes. Health & Social Care in the Community, 17(5), 485–494. https://doi.org/10.1111/j.1365-2524.2009.00850.x
Município de Oeiras. (2021). Plano Local de Oeiras para as Demências.
Newman, J., Barnes, M., Sullivan, H., & Knops, A. (2004). Public Participation and Collaborative Governance. Journal of Social Policy, 33(2), 203–223. https://doi.org/10.1017/S0047279403007499
OECD. (2018). Care Needed. OECD. https://doi.org/10.1787/9789264085107-en
Office of the Assistant Secretary for Planning and Evaluation. (2018). A profile of older adults with dementia and their caregivers .
Santana, I., Farinha, F., Freitas, S., Rodrigues, V., & Carvalho, Á. (2015). Epidemiologia da Demência e da Doença de Alzheimer em Portugal: Estimativas da Prevalência e dos Encargos Financeiros com a Medicação. Acta Médica Portuguesa, 28(2), 182–188. https://doi.org/10.20344/amp.6025
Schmachtenberg, T., Monsees, J., & Thyrian, J. R. (2022). Structures for the care of people with dementia: a European comparison. BMC Health Services Research, 22(1), 1372. https://doi.org/10.1186/s12913-022-08715-7
Shannon, K., Bail, K., & Neville, S. (2019). Dementia‐friendly community initiatives: An integrative review. Journal of Clinical Nursing, 28(11–12), 2035–2045. https://doi.org/10.1111/jocn.14746
Surr, C. A., Gates, C., Irving, D., Oyebode, J., Smith, S. J., Parveen, S., Drury, M., & Dennison, A. (2017). Effective Dementia Education and Training for the Health and Social Care Workforce: A Systematic Review of the Literature. Review of Educational Research, 87(5), 966–1002. https://doi.org/10.3102/0034654317723305
Teri, L., McCurry, S. M., Logsdon, R., & Gibbons, L. E. (2005). Training Community Consultants to Help Family Members Improve Dementia Care: A Randomized Controlled Trial. The Gerontologist, 45(6), 802–811. https://doi.org/10.1093/geront/45.6.802
Wimo, A., Prince, M. J., Guerchet, M., Ali, G., & Wu, Y. (2015). World Alzheimer Report 2015 - The Global Impact of Dementia: An analysis of prevalence, incidence, cost and trends.
World Health Organization, & Alzheimer’s Disease International. (2012). Dementia, a public health priority.
Downloads
Published
Issue
Section
License
Copyright (c) 2023 Marlene Rosa, Susana Lopes, Raquel Sabino
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Cidades, Comunidades e Territórios by DINÂMIA'CET-IUL is licensed under a Creative Commons Atribuição-Uso Não-Comercial-Proibição de realização de Obras Derivadas 4.0 Unported License.Permissions beyond the scope of this license may be available at mailto:cidades.dinamiacet@iscte.pt.
