Training parents of children with autism spectrum disorder during the diagnosis phase

scoping review protocol

Authors

DOI:

https://doi.org/10.48492/servir0209.35753

Keywords:

Autism Spectrum Disorder, Parents, Training, Diagnosis

Abstract

Introduction: The diagnosis of autism spectrum disorder in children is a complex and demanding process for many families. The support and training provided at the time of diagnosis have a significant impact on the family's experience.

Objectives: To map the scientific evidence on strategies for training parents of children with autism spectrum disorder in the diagnostic phase.

Methods: Scoping Review protocol based on the Joanna Briggs Institute® methodology. Research conducted in the databases MEDLINE Complete, CINAHL Complete, Cochrane Central Register of Controlled Trials, Nursing & Allied Health Collection: Comprehensive, Cochrane Database of Systematic Reviews Library, Information Science & Technology Abstracts, Open Access Scientific Repositories of Portugal, and Virtual Health Library, with no time limit. Research protocol registered in the Open Science Framework (https://doi.org/10.17605/OSF.IO/HVUA8).

Results: The aim is to map strategies for training parents of children with autism spectrum disorder during the diagnostic phase.

Conclusion: The protocol outlines the methodology for a Scoping Review that will analyze and synthesize knowledge about strategies for training parents during the diagnosis of children with autism spectrum disorder.

Downloads

Download data is not yet available.

References

American Psychiatric Association. (2013). Manual diagnóstico e estatístico de transtornos mentais: DSM-5 (5ª ed.). Artmed. ISBN 978-85-8271-088-3.

Cerero, J., Rueda, M. e Meneses, E. (2024) The Impact of Parental Involvement on the Educational Development of Students with Autism Spectrum Disorder. Children 2024, 11(9), 1062; https://doi.org/10.3390/children11091062

Estes, A., Yoder, P., McEachin, J., Hellemann, G., Munson, J., Greenson, J., Rocha, M., Gardner, E., & Rogers, S. J. (2021). The effect of early autism intervention on parental sense of efficacy in a randomized trial depends on the initial level of parent stress. Autism: The International Journal of Research and Practice, 25(7), 1924–1934. https://doi.org/10.1177/13623613211005613

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). (n.d.). What are the symptoms of autism? https://www.nichd.nih.gov/health/topics/autism/conditioninfo/symptoms-appear

Instituto Nacional de Saúde Doutor Ricardo Jorge. (2020). Boletim epidemiológico: Observações (N.º 27). https://repositorio.insa.pt/bitstream/10400.18/7240/1/Boletim_Epidemiologico_Observacoes_N27_2020_artigo9.pdf

Hirota, T., & King, B. H. (2023). Autism Spectrum Disorder: A Review. JAMA, 329(2), 157-168. https://doi.org/10.1001/jama.2022.23661

Hyman, S. L., Levy, S. E., Myers, S. M., Kuo, D. Z., Apkon, S., Davidson, L. F., Ellerbeck, K. A., Foster, J. E. A., Noritz, G. H., Leppert, M. O., Saunders, B. S., Stille, C., Yin, L., Weitzman, C. C., Childers, D. O., Levine, J. M., Peralta-Carcelen, A. M., Poon, J. K., Smith, P. J., ... Bridgemohan, C. (2020). Identification, evaluation, and management of children with autism spectrum disorder. Pediatrics, 145(1), e20193447. https://doi.org/10.1542/peds.2019-3447

Maenner, M. J., Warren, Z., Williams, A. R., Amoakohene, E., Bakian, A. V., Bilder, D. A., Durkin, M. S., Fitzgerald, R. T., Furnier, S. M., Hughes, M. M., Ladd-Acosta, C. M., McArthur, D., Pas, E. T., Salinas, A., Vehorn, A., Williams, S., Esler, A., Grzybowski, A., Hall-Lande, J., ... Shaw, K. A. (2023). Prevalence and characteristics of autism spectrum disorder among children aged 8 years — Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2020. MMWR. Surveillance Summaries, 72(2), 1–14. https://doi.org/10.15585/mmwr.ss7202a1

Meleis, A. I. (2010). Transitions theory: Middle-range and situation-specific theories in nursing research and practice. Springer Publishing Company. ISBN 978-0-8261-0535-6.

Milgramm, A., Corona, L. L., Janicki-Menzie, C., & Christodulu, K. V. (2022). Community-based Parent Education for Caregivers of Children Newly Diagnosed with Autism Spectrum Disorder. Journal of autism and developmental disorders, 52(3), 1200–1210. https://doi.org/10.1007/s10803-021-05025-5 10 de 10

Ordem dos Enfermeiros. (2015). Guia orientador de boa prática – Adaptação à parentalidade durante a hospitalização. Ordem dos Enfermeiros. ISBN 978-989-8444-26-4.

Organização Mundial da Saúde. (2023). Global report on health equity for persons with disabilities 2022. World Health Organization. https://iris.who.int/bitstream/handle/10665/365814/9789240065505-eng.pdf

Rojas-Torres, L. P., Alonso-Esteban, Y., & Alcantud-Marín, F. (2020). Early intervention with parents of children with autism spectrum disorders: A review of programs. Children, 7(12), 294. https://doi.org/10.3390/children7120294

Published

2024-10-07

How to Cite

Lemos, M., Mârques, G., & Silva, S. (2024). Training parents of children with autism spectrum disorder during the diagnosis phase: scoping review protocol . Servir, 2(09), e35753. https://doi.org/10.48492/servir0209.35753