Nurses´ perspectives in empowering family caregivers of a person with lower limb amputation
DOI:
https://doi.org/10.29352/mill0221e.36965Keywords:
Keywords: amputation; empowerment; family caregiver; lower limb; nursesAbstract
Introduction: Lower limb amputation is one of the main causes of disability, primarily due to vascular problems, and represents more than 80% of cases. Loss of autonomy leads to permanent disability and requires caregivers to provide help. Before a patient's discharge, it is essential to assess and improve the needs and skills of caregivers.
Objective: To explore nurses' perspectives on empowering family caregivers of a person with major lower limb amputation of vascular etiology upon returning home.
Methods: This exploratory, cross-sectional, descriptive study used a qualitative approach. Semi-structured interviews were conducted with 13 nurses from a hospital in Northern Portugal. Content analysis was performed using the ATLAS. ti software and Bardin's methodology.
Results: The interviews revealed four main categories: (i) amputee needs/difficulties, (ii) family caregiver needs/difficulties, (iii) transitioning home, and (iv) strategies to promote family caregiver empowerment. The results underline the need to improve discharge planning and the empowerment of family caregivers.
Conclusion: The experiences and perspectives of nurses in empowering family caregivers can contribute to the development of programs that support family caregivers of individuals with major lower limb amputation returning home.
Downloads
References
Abreu, W., Tolson, D., Jackson, G. A., & Costa, N. (2018). A cross-sectional study of family caregiver burden and psychological distress linked to frailty and functional dependency of a relative with advanced dementia. Dementia, 19(2), 147130121877384. https://doi.org/10.1177/1471301218773842
Alessa, M., Alkhalaf, H. A., Alwabari, S. S., Alwabari, N. J., Alkhalaf, H., Alwayel, Z., & Almoaibed, F. (2022). The psychosocial impact of lower limb amputation on patients and caregivers. Cureus, 14(11). https://doi.org/10.7759/cureus.31248
Araújo, O., Lage, I., Cabrita, J., & Teixeira, L. (2018). Training informal caregivers to care for older people after stroke: A quasiexperimental study. Journal of Advanced Nursing, 74(11). https://doi.org/10.1111/jan.13714
Bardin, L. (2020). Análise de conteúdo (4ª ed.). Edições 70 Becqué, Y. N., Rietjens, J. A. C., van der Heide, A., & Witkamp, E. (2021). How nurses support family caregivers in the complex context of end-of-life home care: A qualitative study. BMC Palliative Care, 20(1). https://doi.org/10.1186/s12904-02100854-8
Bernatchez, J., Mayo, A., & Kayssi, A. (2021). The epidemiology of lower extremity amputations, strategies for amputation prevention, and the importance of patient-centered care. Seminars in Vascular Surgery, 34(1), 54–58. https://doi.org/10.1053/j.semvascsurg.2021.02.011
Çamur, S., Batlbay, S. G., & Bayram, S. (2020). Effect of lower extremity amputation on caregiving burden in caregivers of patients with diabetic foot: Prospective cohort study. International Wound Journal, 17(4), 890-896. https://doi.org/10.1111/iwj.13342
Cloyes, K. G., Hart, S. E., Jones, A. K., & Ellington, L. (2019). Where are the family caregivers? Finding family caregiver-related content in foundational nursing documents. Journal of Professional Nursing 36(1), 76-84. https://doi.org/10.1016/j.profnurs.2019.06.004
Dixe, M. dos A. C. R., da Conceição Teixeira, L. F., Areosa, T. J. T. C. C., Frontini, R. C., de Jesus Almeida Peralta, T., & Querido, A. I. F. (2019). Needs and skills of informal caregivers to care for a dependent person: A cross-sectional study. BMC Geriatrics, 19(1), 255. https://doi.org/10.1186/s12877-019-1274-0
Fatima, S. Z. (2022). Life of an amputee: Predictors of quality of life after lower limb amputation. Wiener Medizinische Wochenschrift, 173, 329-333. https://doi.org/10.1007/s10354-022-00980-9
Fuhrmann, A. C., Bierhals, C. C. B. K., Santos, N. O. dos., Machado, D. de O., Cordova, F. P., & Paskulin, L.M.G. (2021). Construction and validation of an educational manual for family caregivers of older adults after a stroke. Texto & Contexto - Enfermagem, 30, e20190208. https://doi.org/10.1590/1980-265X-TCE-2019-0208
Gonzalo-Ciria, L., Gascón-Catalán, A., Laborda-Soriano, A. A., Cambra-Aliaga, A., Ruiz-Garrós, M. C., & Perez-de-Heredia-Torres, M. (2024). Difficulties fulfilling self-care needs among family caregivers: An observational study. The American Journal of Occupational Therapy, 78(3). https://doi.org/10.5014/ajot.2024.050528
Hussain, M. A., Al-Omran, M., Salata, K., Sivaswamy, A., Forbes, T. L., Sattar, N., Aljabri, B., Kayssi, A., Verma, S., & de Mestral, C. (2019). Population-based secular trends in lower-extremity amputation for diabetes and peripheral artery disease. Canadian Medical Association Journal, 191(35), E955–E961. https://doi.org/10.1503/cmaj.190134 I.
Fouad, A., Amin Sayed, M., M. Sanad, H., & Magdi Samuel, V. (2022). Family-centered empowerment model effect on stroke patients and their care givers. Egyptian Journal of Health Care, 13(1), 1768–1782. https://doi.org/10.21608/ejhc.2022.239127
Kazemi, A., Azimian, J., Mafi, M., Allen, K.-A., & Motalebi, S. A. (2021). Caregiver burden and coping strategies in caregivers of older patients with stroke. BMC Psychology, 9(1), 51. https://doi.org/10.1186/s40359-021-00556-
Keeves, J., Hutchison, A., D’Cruz, K., & Anderson, S. (2022). Social and community participation following traumatic lower limb amputation: An exploratory qualitative study. Disability and Rehabilitation, 45(26). https://doi.org/10.1080/09638288.2022.2152114
Madsen, U. R., Baath, C., Berthelsen, C. B., & Hommel, A. (2018). Age and health-related quality of life, general self-efficacy, and functional level 12 months following dysvascular major lower limb amputation: A prospective longitudinal study. Disability and Rehabilitation, 41(24), 2900–2909. https://doi.org/10.1080/09638288.2018.1480668
Mathis, S. L., & Welch, M. R. (2020). A theoretical model of physical function and mobility apprehension in persons with amputation of a lower limb. JPO Journal of Prosthetics and Orthotics, 33(4), 243–248. https://doi.org/10.1097/jpo.0000000000000341
Mayo, A. L., Viana, R., Dilkas, S., Payne, M., Devlin, M., MacKay, C., Cimino, S. R., Sara, & Hitzig, S. L. (2022). Self-reported health condition severity and ambulation status postmajor dysvascular limb loss. Prosthetics and Orthotics International, 46(3), 239–245. https://doi.org/10.1097/pxr.0000000000000106
Meleis, A. I., Sawyer, L. M., Im, E. O., Messias, D. K., & Schumacher, K. (2000). Experiencing transitions: An emerging middle-range theory. Advances in Nursing Science, 23(1), 12–28. https://doi.org/10.1097/00012272-200009000-00006
Mollica, M. A., Smith, A. W., & Kent, E. E. (2020). Caregiving tasks and unmet supportive care needs of family caregivers: A U.S. population-based study. Patient Education and Counseling, 103(3), 626–634. https://doi.org/10.1016/j.pec.2019.10.015
Moradi, A., Ebrahimzadeh, M. H., & Soroush, M. R. (2015). Quality of life of caregiver spouses of veterans with bilateral lower extremity amputations. Trauma Monthly, 20(1). https://doi.org/10.5812/traumamon.21891
Orem, D. E. (2001). Nursing: Concepts of practice. (6th ed.). Mosby. Schaffalitzky, E., Gallagher, P., Maclachlan, M., & Ryall, N. (2011). Understanding the benefits of prosthetic prescription: Exploring the experiences of practitioners and lower limb prosthetic users. Disability and Rehabilitation, 33(15-16), 1314–1323. https://doi.org/10.3109/09638288.2010.529234
Schorderet, C., Ludwig, C., Wüest, F., Bastiaenen, C. H. G., de Bie, R. A., & Allet, L. (2022). Needs, benefits, and issues related to home adaptation: A user-centered case series applying a mixed-methods design. BMC Geriatrics, 22(1), 526. https://doi.org/10.1186/s12877-022-03204-2
Simari, R. S., Anjos, A. C. Y. dos, Garcia, L. A. A., Silva, L. C. C. de M., & Querino, R. A. (2021). Cuidadores domiciliares: Sobrecarga de trabalho e rede de apoio. Revista Recien - Revista Científica de Enfermagem, 11(34), 192–202. https://doi.org/10.24276/rrecien2021.11.34.192-202
Tanrikulu, F., & Dikmen, Y. (2024). The effect on home caregivers of a family support program based on a nurse-led case management model: A randomized controlled pilot trial. Home Health Care Management & Practice, 36(2), 102–111. https://doi.org/10.1177/10848223231205200
Thiengtham, S., D’Avolio, D., & Leethong-in, M. (2021). Family involvement in transitional care from hospital to home and its impact on older patients, families, and health care providers. JBI Evidence Synthesis, Publish Ahead of Print 20(2), 606612. https://doi.org/10.11124/jbies-20-00455
Ugalde, A., Gaskin, C. J., Rankin, N. M., Schofield, P., Boltong, A., Aranda, S., Chambers, S., Krishnasamy, M., & Livingston, P. M. (2019). A systematic review of cancer caregiver interventions: Appraising the potential for implementation of evidence into practice. Psycho-Oncology, 28(4), 687–701. https://doi.org/10.1002/pon.5018
Veronese, M., Simeone, S., Virgolesi, M., Rago, C., Vellone, E., Alvaro, R., & Pucciarelli, G. (2024). The lived experience of caregivers in the older stroke survivors’ care pathway during the transitional home program: A qualitative study. International Journal of Environmental Research and Public Health, 21(10), 1276–1276. https://doi.org/10.3390/ijerph21101276
Wang, T., Mazanec, S. R., & Voss, J. G. (2021). Needs of informal caregivers of patients with head and neck Cancer: A systematic review. Oncology Nursing Forum, 48(1), 11–29. https://doi.org/10.1188/21.ONF.11-29
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2026 Millenium - Journal of Education, Technologies, and Health

This work is licensed under a Creative Commons Attribution 4.0 International License.
Authors who submit proposals for this journal agree to the following terms:
a) Articles are published under the Licença Creative Commons (CC BY 4.0), in full open-access, without any cost or fees of any kind to the author or the reader;
b) The authors retain copyright and grant the journal right of first publication, allowing the free sharing of work, provided it is correctly attributed the authorship and initial publication in this journal;
c) The authors are permitted to take on additional contracts separately for non-exclusive distribution of the version of the work published in this journal (eg, post it to an institutional repository or as a book), with an acknowledgment of its initial publication in this journal;
d) Authors are permitted and encouraged to publish and distribute their work online (eg, in institutional repositories or on their website) as it can lead to productive exchanges, as well as increase the impact and citation of published work
Documents required for submission
Article template (Editable format)

