Parent’s perception of their children’s quality of life to health
Keywords:quality of life, health, children and adolescents, parents
Introduction: The perception of children and adolescents´ quality of life has been a subject of several current studies (Abreu et al., 2016; Gaspar et al., 2008). However, studies on the parents' perception of children's quality of life are still scarce, which shows the relevance of this study.
Objetive: To determine socio-demographic variables related to parents (father and mother) that influence their perception of their children's Health-Related Quality of Life (HRQoL).
Methods: A quantitative, cross-sectional and descriptive-relational study with a convenience sample of a 592 parents of children who attended the 2nd and 3rd cycle schools in the central region of Portugal. The sample revealed an age mean of 40.43 years. Their children had an age mean of 12.43 years. Data collection, through the Portuguese version for parents of the KIDSCREEN scale - 52 © (Gaspar & Matos, 2008; Matos et al. 2013), took place in the year 2018/2019.
Results: The dimensions of the HRQoL best perceived by parents, through their weighted average, were Bullying (mean=84.2417.44), followed by Family and family environment (mean=82.6613.81 ) and the overall mood state (mean=81.7914.76). The worst perceived dimension was the School environment and learning (mean=72.6015.12).
Conclusion: The results indicate that both parents have a greater perception of children’s and adolescents´ HRQoL dimensions when relating to bullying, family, family environment and global mood. Younger parents revealed a better perception of their children's HRQoL.
Abreu, M., Marques, I., Martins, M., Fernandes, T. M., & Gomes, P. (2016). Qualidade de vida relacionada com a saúde em crianças e adolescentes: Estudo bicêntrico e comparação com dados europeus. Nascer e Crescer,25(3), 141-146. http://www.scielo.mec.pt/pdf/nas/v25n3/v25n3a03.pdf
Azevedo, T. D. P. L., & Alves, E. D. (2016). Qualidade de vida de adolescentes: Revisão da literatura e perspectivas atuais. Revista Eletrônica Gestão & Saúde, 7(2), 851-872. https://periodicos.unb.br/index.php/rgs/article/view/3549
Camelier, A. A. (2004). Avaliação da qualidade de vida relacionada à saúde em pacientes com DPOC: Estudo de base populacional com o SF-12 na cidade de São Paulo-SP [Dissertação de mestrado, Universidade Federal de São Paulo]. Repositório Institucional UNIFESP. http://repositorio.unifesp.br/handle/11600/20321
Chang, P., & Yeh, C. (2005). Agreement between child self-report and parent proxy: Report to evaluate quality of life in children with cancer. Psycho-Oncology, 14(2), 125-134. doi: 10.1002/pon.828.
Ferrans, C. E. (1996). Development of a conceptual model of quality of life. Scholarly inquiry for nursing practice, 10(3), 293-304.
Gaspar, T., & Matos, M. (coords.). (2008). Qualidade de vida em crianças e adolescentes versão portuguesa dos intrumentos Kidscreen 52. Fundação para a Ciência e Tecnologia. http://www.fmh.utl.pt/aventurasocial/pdf/Qualidade.de.Vida.KIDSCREEN.pdf
Gaspar, T., Matos, M. G., Batista-Foguet, J. Pais- Ribeiro, J., Leal, I., Erhart, M., & Ravens-Sieberer, U. (2010). Parent-child perceptions of quality of life: Implications for health intervention. Journal of Family Studies, 16(2), 143-154. doi: 10.5172/jfs.16.2.143.
Gaspar, T., Matos, M. G., Ribeiro, J. l. P., & Leal, I. (2006). Qualidade de vida e bem-estar em crianças e adolescentes. Revista Brasileira de Terapia Cognitiva,2(2), 47-60.
Gaspar, T., Matos, M., Ribeiro, J. L. P., Leal, I., Erhart, M., & Ravens-Sieberer, U. (2010). Kidscreen: Quality of life in children and adolescents. Journal of Child and Adolescent Psychology, 1, 49-64.
Gaspar, T., Ribeiro, J. L. P., Matos, M. G., & Leal, I. (2008). Promoção de qualidade de vida em crianças e adolescentes. Psicologia, Saúde & Doenças, 9(1), 55-71.
Gaspar, T., Ribeiro, J. L. P., Matos, M. G., Leal, I., & Ferreira, A. (2009). Optimismo em crianças e adolescentes: Adaptação e validação do LOT-R. Psicologia, Reflexão e Critica, 22(3), 439-446. https://doi.org/10.1590/S0102-79722009000300015
Guyatt, G. H., Feeny, D. H., & Patrick, D. L. (1993). Measuring health-related quality of life. Annals of Internal Medicine, 11(8), 622- 629. https://doi.org/10.7326/0003-4819-118-8-199304150-00009
Jokovic, A., Locker, D., & Guyatt, G. (2004). How well do parents no their children? Implication for proxy reporting of child health-related quality of life. Quality of Life Research, 13(7), 1297-1307. https://doi.org/10.1023/B:QURE.0000037480.65972.eb
Matos, M. G., Gaspar, T., Simões, C. &, The European KIDSCREEN Group. (2013). Kidscreen -52: Parent’s perception of their children’s quality of life. Psicologia, Saúde & Doenças, 14(3), 437-451. http://www.scielo.mec.pt/scielo.php?script=sci_arttext&pid=S1645-00862013000300006&lng=es&nrm=iso
Matos, M., Gaspar, T., Ferreira, M., Linhares, F., Simões, C., Diniz, J., Ribeiro, J., Leal, I., & Equipa do Aventura Social. (2006). Qualidade de vida em crianças e adolescentes: Projecto Europeu Kidscreen: Relatório Português. http://www.fmh.utl.pt/aventurasocial/pdf/Kids2006.pdf
Ribeiro, J. (2003). Quality of life is a primary end-point in clinical settings. Clinical Nutrition 23 (1) 121-130.
Soares, A. H. R., Martins, A. J., Lopes, M. C. B., Brito, J. A. A. Oliveira, C. Q., & Moreira, M. C. N. (2011). Qualidade de vida de crianças e adolescentes: Uma revisão bibliográfica. Ciência & Saúde Coletiva, 16(7), 3197-3206. http://www.scielo.br/pdf/csc/v16n7/19.pdf
The World Health Organization Quality of Life Group. (1995). The World Health Organization Quality of Life assessment (WHOQOL): Position paper from the World Health Organization. Social Science & Medicine (1982), 41(10), 1403–1409. https://doi.org/10.1016/0277-9536(95)00112-k https://www.sciencedirect.com/science/article/pii/027795369500112K?via%3Dihub
Theunissen, N. C. M., Vogels, T. G. C., Koopman, H. M., Verrips, G. H. W., Zwinderman, K. A. H., Verloove-Vanhorick, S. P., & Wit, J. M. (1998). The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research, 7(5), 387-397.
Wallander, J. L., Schmitt, M., & Koot, H. M. (2001). Quality of life measurement in children and adolescents: Issues, instruments, and applications. Journal of Clinical Psychology, 57(4), 571-585. doi: 10.1002/jclp.1029.
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