Meanings attributed by adolescents with chronic disease to their health condition: review of qualitative evidence

Authors

DOI:

https://doi.org/10.29352/mill0212e.27882

Keywords:

adolescent; meanings; emotions; chronic disease

Abstract

Introduction: The adolescent who experiences a chronic illness process goes through a health-illness transition. It is known that the meanings attributed to the health condition have the potential to facilitate or inhibit these adaptive processes.

Objective: This study aims to describe the meanings adolescents with chronic illness attribute to their health condition.

Methods: It is a Systematic Literature Review with Meta-Synthesis according to the model of the Joanna Briggs® Institute. The syntheses of the findings were evaluated using the ConQual Score.

Results: The results are presented in the form of two aggregated qualitative summaries: 1. The chronic condition is seen by the adolescent as an injustice that differentiates him from peers and contributes to isolation; 2. With time and with the help of friends, the teenager perceives benefits in his chronic health condition. It appears that as the adolescent has a greater perception of the condition of having a disease, he experiences negative feelings. On the other hand, disease support technology is seen as positive.

Conclusion: We conclude that it is important to assist the adolescent in redefining negative meanings and enhancing the feeling of autonomy, reducing social isolation, and allowing the use of equipment/technologies to support limitations.

Downloads

Download data is not yet available.

References

Alencar, D., Lima, A., Almeida, V., Sampaio, K., Damasceno, M. & Alencar, A. (2013). Sentimentos de adolescentes com Diabetes Mellitus frente ao processo de viver com a doença. Revista Brasileira de Enfermagem, 66(4), 479-484. https://doi.org/10.1590/S0034-71672013000400003

Araújo, Y., Collet, N., Gomes, I. & Amador, D. (2011). Saberes e experiências de adolescentes hospitalizados com doença crónica. Revista de Enfermagem da Universidade do Estado do Rio de Janeiro, 19(2), 274-279. http://www.revenf.bvs.br/pdf/reuerj/v19n2/v19n2a17.pdf

Aromataris, E. & Munn, Z. (2020). JBI Manual for Evidence Synthesis. JBI. https://synthesismanual.jbi.global. https://doi.org/10.46658/JBIMES-20-01

Berntsson, L., Berg, M., Brydolf, M., & Hellström, A.-L. (2007). Adolescents’ experiences of well-being when living with a long-term illness or disability. Scandinavian Journal of Caring Sciences, 21(4), 419–425. https://doi.org/10.1111/j.1471-6712.2006.00490.x

Cavini, F., Gonçalves, K., Cordeiro, S. Moreira, D. & Resck, Z. (2016). Experiences of diabetic adolescents: a Phenomenological Approach. Journal of Nursing UFPE, 10(2), 805-813. DOI: 10.5205/reuol.6884-59404-2-SM-1.1002sup201615 https://periodicos.ufpe.br/revistas/revistaenfermagem/article/viewFile/11023/12406

Damião, E. & Pinto, C. (2007). “sendo transformado pela doença”: a vivência do adolescente com diabetes. Revista Latino Americana de Enfermagem, 15(4), 1-7. https://www.revistas.usp.br/rlae/article/view/16127/17717

Fonseca, P. (2017). Adolescência. In Imprensa da Universidade de Coimbra (Ed.). Lições de Pediatria (pp. 1–15). Coimbra. doi:10.14195/978-989-26-1300-0_14

Freire, M. H. S., Pereira, R. A., Ramos, E. J., Matos, V. de F. A., & Migoto, M. T. (2015). O Impacto da anemia falciforme na qualidade de vida. Cogitare Enfermagem, 33(3), 548–555. DOI:10.5380/ce.v20i3.42027. https://www.researchgate.net/publication/282429254_O_IMPACTO_DA_ANEMIA_

FALCIFORME_NA_VIDA_DE_ADOLESCENTE

Fuchs, C. E., Sinnema, G., van Geelen, S. M., Hermans, H. J. M., & Kuis, W. (2008). Self-investigation to explore the impact of juvenile arthritis on adolescent life: A case-study. Patient Education and Counseling, 72(1), 163–167. https://doi.org/10.1016/j.pec.2008.03.005

Gommersall, J., Jadotte, Y. T., Xue, Y., Lockwood, S., Riddle, D. & Preda, A. (2014). The Joanna Briggs Institute Reviewers’ Manual: The Systematic Review of Economic Evaluation Evidence. Joanna Briggs Institute. https://reviewersmanual.joannabriggs.org/

Lockwood, C., Porritt, K., Munn, Z., Rittenmeyer, L., Salmond, S., Bjerrum, M., Loveday, H., Carrier, J. & Stannard, D. (2020). Chapter 2: Systematic reviews of qualitative evidence. JBI Manual for Evidence Synthesis. https://doi.org/10.46658/JBIMES-20-03

Meleis, A. I. (2010).Transitions Theory: Middle range and situation specific theories in nursing research and practice. Springer Publishing Company. https://taskurun.files.wordpress.com/2011/10/transitions_theory__middle

_range_and_situation_specific_theories_in_nursing_research_and_practice.pdf

Michaud, Pierre-André, Suris, Joan-Carles & Viner, Russell. (‎2007)‎. The adolescent with a chronic condition: epidemiology, developmental issues, and health care provision. World Health Organization. https://apps.who.int/iris/handle/10665/43775

Munn,Z., Porritt, K., Lockwood, C., Aromataris, E., & Pearson, A. (2014). Establishing confidence in the output of qualitative research synthesis: The ConQual approach. BMC Medical Research Methodology, 14(1), 1–7 https://doi.org/10.1186/1471-2288-14-108

Ordem dos Enfermeiros. (2010). Guias Orientadores de Boa Prática em Enfermagem de Saúde Infantil e Pediátrica. Volume I. Ordem dos Enfermeiros.

Papalia, D. E. & Duskin, R. (2013). Desenvolvimento Humano. McGraw-Hill.

Pearson, A. (2004). Balancing the evidence: incorporating the synthesis of qualitative data into systematic reviews. Joanna Briggs Institute Reports, 2, 45-64. https://doi.org/10.1111/j.1479-6988.2004.00008.x

Rhee, H., Fairbanks, E., & Butz, A. (2014). Symptoms, feelings, activities and medication use in adolescents with uncontrolled asthma: Lessons learned from asthma diaries. Journal of Pediatric Nursing, 29(1), 39–46. https://doi.org/10.1016/j.pedn.2013.04.009

Rhee, H., Wenzel, J., & Steeves, R. H. (2007). Adolescents’ psychosocial experiences living with asthma: A focus group study. Journal of Pediatric Health Care: Official Publication of National Association of Pediatric Nurse Associates & Practitioners, 21(2), 99–107. https://doi.org/10.1016/j.pedhc.2006.04.005

Russo, K. (2022). Assessment and Treatment of Adolescents With Chronic Medical Conditions. Journal of Health Service Psychology, 48(2), 69–78. https://doi.org/10.1007/s42843-022-00059-4

Schneider, K. & Martini, J. (2011). Cotidiano do adolescente com doença crônica. Texto Contexto Enfermagem, 20(esp), 194-204. https://www.scielo.br/j/tce/a/Yx9xNjhfhDRFXS4GTBKy7Dr/?format=pdf&lang=pt

Schumacher, K. L., & Meleis, A. I. (1994). Transitions: A Central Concept in Nursing. The Journal of Nursing Scholarship, 26(2), 119-127. doi: 10.1111/j.1547-5069.1994.tb00929.x

Spratling, R. (2012). The experiences of medically fragile adolescents who require respiratory assistance. Journal of Advanced Nursing, 68(12), 2740–2749. https://doi.org/10.1111/j.1365-2648.2012.05979.x

Yeo, M., & Sawyer, S. (2005). Chronic illness and disability. BMJ, 330(7493), 721–723. https://doi.org/10.1136/bmj.330.7493.721

Published

2023-07-31

How to Cite

Cunha, S., Aparício, G., & Silva, E. (2023). Meanings attributed by adolescents with chronic disease to their health condition: review of qualitative evidence. Millenium - Journal of Education, Technologies, and Health, 2(12e), e27882. https://doi.org/10.29352/mill0212e.27882

Issue

Section

Life and Healthcare Sciences